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Home / Health / Life with an Ostomy

Life with an Ostomy

Feb 7, 2021 ·

I had a choice: become a victim, or turn this experience into the greatest thing that has ever happened to me. I chose greatness, but getting here wasn’t easy.

On February 4th, 2011, at the age of 26, I was gifted an ostomy (technically an ileostomy). This changed the way that I perceived the world, and it also saved my life.

women walking outside with an ostomy

My experience of life with an ostomy:

The physical recovery from this surgery, including having 6+ feet of intestine removed, was no joke, but the mental aspect was something that I was not at all prepared for. It was the hardest thing that I have ever lived through, and it brought me to my knees more times than I can count. While I’m sure that they meant it with love, medical professionals were constantly telling me all the things that I wouldn’t be capable of. Every online ostomy forum that I came across was the most depressing thing that I had ever read, as I never witnessed anyone who shared even a glimmer of hope. I’ll always remember reading about a woman in her 60’s who wanted to end her own life, simply because she had an ostomy, too. In that moment, something shifted in me. I REFUSED to let anyone else write my story for me. I didn’t know how, but I knew that I would do whatever it took to turn this experience into something great.

We live in a society that does its best to make us believe that we need to look like the photoshopped models in the magazines, in order to be accepted. There are billion-dollar industries built on the idea that we will hate our bodies and believe that they need to be “fixed.” It would have been so easy for me to fall into a victim mentality, staying sick, hating my body for everything that it did “wrong,” and taking others’ limiting beliefs on as my own. Quite frankly, who would have blamed me? I spent the majority of my life just wanting to “fit in” and be “normal,” and it took me having this surgery to be DONE with any of that.

It took me serious mental work and pure dedication to get to the point where I now love and accept my body EXACTLY as it is. I don’t love it for what it looks like, because illness has given me the deep understanding that my looks can change in the blink of an eye. I love my body for what it is CAPABLE of.

I’m mentally and physically stronger than ever before because I made the commitment to become this person, and I put in the work to get here (and still do, every single day). I decided to be the proof that anyone can build the life that they truly want, and it doesn’t matter where you’re starting from, or what anyone else says. The only thing that matters is what you believe to be true.

What could happen if you made the decision to change your life? What could happen if you stopped hating your body, and instead, started to focus on everything that it does right? What would change? For me, this has changed EVERYTHING.

Now, let’s dive into the most common questions I get:

What do I wish I would have known before going into ostomy surgery?

I wish I would have been more mentally prepared for what was to come after surgery. I expected that this surgery would heal me, and my health would thrive afterwards, but the opposite was true. While my doctors meant well, and they could save my life – they didn’t know how to make me healthy, and there’s a huge difference. This surgery was the hardest thing I have ever been through, both mentally and physically, and I only wish that I’d been more prepared for this.

However, the blessing in disguise was that this drove me to find my own path to healing. This is what made having an ostomy become one of the greatest gifts I’ve ever been given!

Why have I not had my ileostomy reversed?

I always have the option of having it reversed, but quite frankly, I love my life as is. Having an ostomy is easy now, and it’s just simply a very small part of who I am. It’s also a strong, daily reminder of what I’ve already overcome! There are also risks and life-long complications that can come along with having an ostomy reversed, which I’m just not willing to take. At this point, I have no desire to have another surgery, but that’s simply my own personal choice.

What’s my diet look like now? How’s it different than before surgery?

The best place to see what my diet really looks like is by following me on Instagram! I often share what I’m eating, which is mainly based around a wide variety of whole, nutrient dense foods. I don’t do well with gluten, so that’s the main thing that I avoid!

Going into surgery, one of nurses had told me how I wouldn’t be able to eat salads or raw vegetables after surgery. And for the next couple of years after surgery, this ended up being true, as I had a really hard time digesting raw vegetables. But, once I healed my gut, this was no longer an issue! I eat a TON of veggies these days and I don’t have any issues.

All in all, my diet is SO much healthier than it was prior to surgery! All of this to say, just because someone says something, doesn’t mean it has to be true for you. Each of us has the opportunity to write our own story, and what a beautiful gift that is!

women hiking with an ostomy

Blog, Health, How I Healed ileostomy, ostomy

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Hi! I’m Kristen.

After being diagnosed with an autoimmune disease at the age of 12, I’ve come to learn that while we don’t always have control over what happens to us, we can always control how we respond and what we do next.
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